KENTUCKY COUNCIL ON DEVELOPMENTAL DISABILITIES
FULL COUNCIL MEETING
May 19, 2005
MEMBERS PRESENT: Diana Berry, Jeff Edwards, Stephanie Gulley, Elbirda Haley, Claudia Johnson, CJ Jones, Harold Kleinert, Chris Kramer, Michael Lyons, Dave Matheis, James McCormick, Germaine O’Connell, Wanda Propes, Margaret Reed, Chastity Ross, and Linda Williams
MEMBERS ABSENT: Bethany Adams, Donna Collins, Sheila Davis, Regina Graddy, Paula Jackson, Michelle Skillman
STAFF: Pat Seybold, Vicki Goins, Adam Jones, Patty Martorano, Shelley Runkle and Carol Tudor
Call to Order: Chastity Ross, Chair, called at 10:00 a.m.
Introductions: Introductions of council and staff were made.
Conflict of Interest: None
Roll Call: Tudor called the roll. Discussion and explanation of quorum.
Additions to Agenda: None Noted.
Approval of February 2005 minutes: No discussion
Haley/ Edwards made MOTION to accept. MOTION PASSED.
Chair Report: Ross opened her report with a discussion regarding an upcoming conference with the National Assoc of Council for Developmental Disabilities. This conference will be held in Washington, D. C. on June 4-7, 2005. Council member, Mike Lyons and staff, Pat Seybold and Adam Jones will be attending. The discussion for the council was to appoint Mike Lyons to represent the KCDD as a voting member.
Edwards/Williams made motion to designate Mike Lyons to vote on the Council’s behalf at the NACDD. MOTION CARRIED. JOHNSON ABSTAINED.
Seybold passed out the needs assessment survey that will be discussed at the August collaborative meeting with KDCC, IHDI and P&A and reminded council to take the survey on the website and urged members to have others fill out the survey online.
Ross followed up on HB296 (autism legislation). The legislature will appoint an independent council consisting of state agencies, consumers and others to develop a 10 year plan for autism. In 2006, KCDD is to take over monitoring of the independent council’s plan and reporting to the Governor on an annual basis. The monitoring would continue until 2015. Attempts have been made to meet with representatives to discuss the bill. The expectation is when the independent council dissolves, some of the members will then be appointed to the KCDD
Ross informed Council of time change for the committee meetings. The new target on Advocacy will meet after the committee meetings.
Jones explained this target for advocacy training has been in development for a year. He added that Public Policy and Quality Assurance will meet together to collaborate on the advocacy training.
Ross informed Council that immediately following the meeting there will a retirement reception for Patty Martorano.
Director’s Report: Patricia Seybold
• Seybold referred members to pg. 20-26 of the meeting book to view the month-end reports.
• Expectations are to have new appointments made to the Council by June.
Membership Committee: Paula Jackson
In her absence, Seybold reminded the Council of upcoming officer elections. Interested parties should contact Jackson. Elections will be held in August.
Council Affairs: Chris Kramer
Kramer began by discussing increasing the Consumer Involvement Fund to $750 and to increase the fund annually based on state increments, and additionally, collapsing the Consumer Involvement Fund and the Council Member Training Policy into one fund by July 1, 2005.
Berry raised the issue of consumers paying up-front costs, many consumers cannot afford to pay their expenses up-front, then wait on reimbursement from the KCDD. Seybold explained this is a State policy and the staff of KDCC continues to work with the Cabinet to find different mechanism. However, under State budgetary guidelines, the KCDD has no alternatives.
(Does this need to be in here or not. I wasn’t sure)
Kramer/Lyons made MOTION to increase Consumer Involvement Fund to $750 and increase the fund annually based on state increments and to collapse the Consumer Involvement Fund and the Council Member Training Fund into one fund. MOTION CARRIED.
Kramer reported that by-law changes will now only be brought to Full Council at the August meetings. By-laws will continue to be discussed and reviewed during Council Affairs meetings, however, voting on changes will only be raised during the Annual Meeting is August.
Kramer/Lyons made motion to only change policies and by-laws during August meeting. MOTION CARRIED.
Kramer then reported on the Orientation Manual. The manual has been updated. The new manual has been given to McCormick for implementation.
********Public Policy: Bethaney Adams
In her absence, Adam Jones reported the focus of the committee at the February meeting was the House Bill for Newborn Screening. The bill passed. This bill (ask Adam, can’t understand tape))
Jones reported on a bill that would enable law enforcement officials to use identifying numbers on handicapped placards to identify the individual using the placard. This would enable police to verify if the permit is valid, if the individual using the placard is the correct user or if the user is wanted.
The bill did not make it to the house floor. However, a work group is to be formed and Bethany Adams is to be appointed to the work group.
Jones reported the Martin School will be presenting the Public Policy Committee with an overview of the legislative session and what happened with disability issues.
Wanda Propes and Seybold met with two transportation brokers and came up with a survey regarding needs assessment. There will be additional follow-up meetings.
Jones discussed the hanging placards developed by the Public Policy Committee and Shelley Runkle. The placards have information regarding illegal handicapped parking. These placards will be given out to law enforcement, doctor’s office and county clerk’s offices.
Adjourned for lunch at 11:30 a.m.
Matheis referred to page 46 of the meeting book to open the discussion about Project ASSET. He informed the Council he had attended the grand opening of one of the new businesses. Office Lunch Express-OLE is a lunch delivery service for office employees.
The APSE will meet in June at the Brown Hotel.
Kleinert reported the medical modules for severe disabilities are beginning to be implemented medical school students. University of Louisville will implement the modules in the fall semester. The Pikeville College will implement them on a limited basis. University of Kentucky has not implemented the modules. The University of Florida will be implementing the modules in June.
The student clinician modules for nurse practitioners and physicians’
assistant were tested in 4 schools in the Spring. Three schools, Northern Kentucky University, Eastern Kentucky University and Spalding University are testing the nurse practitioners’ module. The University of Kentucky has been testing the physicians’ assistant manual. Kleinert has been disappointed in the response rates. He will call the Faculty together in June to have the manuals incorporated in the curriculum. Kleinert reported the second year manuals are excellent. The dental pediatric module is being developed and will be presented to the Council in June. A script and video for the module will be made after the presentation. A full-time coordinator will be hired to facilitate the completion of all the medical modules and to oversee the use of the manuals nationally. The position will start July 1, 2005.
Ross asked if the pediatric dental modules will be used widespread or rather at specialty clinics. Kleinert explained the modules will be used in dental school training with the intent of building capacity within the local communities after the students graduate.
In her absence, Harold Kleinert and Patty Martorano reported. Kleinert reported that the inclusive education initiative is reaching its end. Sixteen schools varying from elementary to high school have been involved with this project. The KCDD target to have students with developmental disabilities attend 80% of the school day has been attained. Kleinert noted he was pleased with the outcomes and wants the Kentucky Department of Education to receive the reports on these schools.
Martorano reported she and Pat Seybold conducted an on-site monitoring visit to Warner Elementary in Nicholasville. They observed inclusion in a third grade classroom setting. The buddy system was in use in the classroom. Martorano reported she has received good responses from principals and teachers.
Martorano then discussed project “EQUIP”. This projects deals with including children with disabilities into the daycare setting. The project is still in the developmental process. However, a daycare center has been chosen as a pilot site and training the workers has begun.
Quality Assurance-- Berry
Adam Jones referred the Council to page 58 in the meeting books.
Jones opened the discussion with transportation and the progress that has been made. The transportation cabinet has solicited for bids for a transportation delivery system. The KCDD will collaborate with the Martin School to create an assessment tool from the Council’s perspective.
Jones reported the councils from Illinois and Arizona have requested Kentucky’s assistance in developing an RFP for a self-advocacy program.
*******Jeff Edwards then reported on the Hispanic Outreach Program. Rounds to counties ASK JEFF FOR REPORT CAN’T UNDERSTAND TAPE
Jones reported CAPWIZ has been added back to the KCDD website.
This software program enables the user to check on current legislation and contact their representatives.
Jones referred the Council to pages 64-65 of the meeting book to review the new targets.
Jones then reported on the visit he and Pat Seybold made to Corbin’ s Self-Advocacy group for the start of their community impact project. The project is still in the developmental stages. The members are discussing which direction and targets to be involved in.
MH/MR-- Claudia Johnson
Education- Margaret Reed
Medicaid- Sheila Davis
Office of the Blind- Beth Cross
Department for Public Health- Diane Chism
Office of Aging-Collins
Office of Vocational Rehabilitation-Dave Matheis
Matheis updated the Council on the efforts at the federal level to include vocational rehabilitation in a block grant of 9 federal employment programs to the governors. This would give discretion on how to spend the money to the governors and effectively ena a guaranteed separate funding stream for vocational rehabilitation. An effort in the House of Representatives to amend the reauthorization of the Workforce Investment Act to create the block grant failed earlier this year. A similar amendment is being considered in the Senate, but, at this time it appears it will not be added.
The agency spends much of its budget on purchasing services for consumers. The cost of purchased services has significantly increased. The rapidly rising cost of tuition is largely responsible. The agency is reviewing some of its rules and policies on purchases to see where money might be saved. The decision was recently made to impose a financial needs test on computers, hearing aids and books for schools, items that have been exempt from such a test until now. This will affect the ability of some individuals to receive assistance for these items from the agency.
The agency has absorbed the staff support functions from the Kentucky Assistive Technology Loan Corporation into central office. Jason Jones and Mabeth Kirkpatrick have been handling these functions. Upon Mabeth’s retirement at the end of May, Sarah Richardson will assume her duties in regards to KATLC. There has been a small increase in applications since the duties were transferred to central office. From January 1 through April 30, 20 loan applications were approved and 19 were denied. The approved application totaled $111,639. Fourteen of the 20 approved loans were for hearing aids. Five more applications, three of which were for modified vehicles, have been approved since May 1. KATLC has loaned $1.5 million since its inception.
UCE Update: Kleinert
Kleinert urged members to fill out needs assessment survey online and asked them to encourage others to fill out the survey.
Kleinert then reported he will be traveling to Illinois in July to collaborate on the MTARS Program being developed there. The MTARS Program consists of the Illinois DD Council, Protection and Advocacy, University of Excellence working.
Kleinert then discussed a grant submitted by Barnie Fleming to work with University of Kentucky residents of rehabilitation medicine and physical medicine to spend month rotation learning about assistive technology for individuals with disabilities.
Protection & Advocacy Report: Jeff Edwards
Non-Profit Update: .
Strong grant committee members have lost funding and have not met in awhile.
Lyons then discussed the issues of transportation regarding people with disabilities.
Goins referred members to pages 67-69 in the meeting book. The budget is on target. Projections for the coming fiscal year seem to be on track.
Ross asked the members what training opportunities the council would like to participate in for upcoming meetings. The Council discussed several ideas and decided on methamphetamine abuse, elder abuse, autism, and training from Kim Townley on pre-school issues. Kleinert also asked the Council to consider training regarding individuals with developmental disabilities who are living with aging parents and the impact on these individuals upon the death of the caregiver.
Seybold asked the members to take a few minutes to review the new orientation manual that has been developed.
Kleinert asked the group to consider composing a letter to the Kentucky Department of Education regarding the new federal regulations. The KDE will begin to compile comments for the state administrative regulations to be aligned with the federal regulations.
MOTION BY BERRY/EDWARDS MADE TO COMPOSE A LETTER TO COMMISSIONER GENE WILHOITE OF THE KDE WITH A COPY TO BARB KIBLER TO EXPRESS THE VIEWS OF THE COUNCIL REGARDING THE LANGUAGE OF THE STATE REGULATIONS TO KEEP THE AGE OF 14 FOR TRANSITIONING AND REINFORCE STUDENT PARTICIPATION. MOTION CARRIED. ABSTAINED-O’CONNELL, MATHEIS, KRAMER
Adjourn: NO ONE MADE A MOTION, ROSS ADJOURNED THE MEETING AT 2:30