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Priorites for children and youth with special needs are available for review

Approximately 20 percent of the CCSHCN budget comes from the federal Maternal and Child Health block grant. CCSHCN is a sub-recipient of the grant, receiving funds through the Kentucky Department of Public Health to assure a system of care for children and youth with special health care needs in Kentucky.

For review, we’ve developed a four-page preview of the CCSHCN portion of the application for this year. Each of the four CCSHCN priorities – transitions, access to care, data capacity and adequate insurance – are condensed onto a single page in which we explore what the priority means, what action steps we are taking and how we will measure our progress.

Read about the priorities for children and youth with special health care needs.

These priorities were developed over a year-long needs assessment process involving family and stakeholder input. We encourage everyone to review this document and we welcome any comments, questions, or requests for more information.

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Presentation files for KY Summit on Access to Care are available

The 2016 KY Summit on Access to Care for Children and Youth with Special Health Care Needs was held May 25 at the Kentucky History Center in Frankfort. Nearly 100 providers, parents, advocates and policymakers attended to discuss issues surrounding access to care for children and young people with special medical and behavioral health needs.

PowerPoint files of presentations are available for viewing and download. The CCSHCN thanks the presenters for allowing us to post their presentations.

Kentucky Medicaid and Access to Care, Stephanie Bates, Branch Manager, Division of Program Quality and Outcomes, Kentucky Department for Medicaid Services

Behavioral Health Access to Care in Kentucky, Allen Brenzel, MD, Medical Director, Kentucky Department of Behavioral Health, Developmental and Intellectual Disabilities

Commission for Children with Special Health Care Needs, Title V, and National and State Performance Measures, Jackie Richardson, Executive Director, Commission for Children with Special Health Care Needs

Telehealth in Kentucky, Rob Sprang, MBA, Director, Kentucky TeleCare

Adverse Childhood Experiences: Impact in KY, Part 1, Part 2, Part 3, Ruth Ann Shepherd, MD, Director, Division of Maternal and Child Health, Kentucky Department of Public Health (posted as PDF files due to size.)

Access to Care for CYSHCN: A National Perspective, Debra Waldron, MD, Director, Division of Services for Children with Special Health Needs, Health Resources and Services Administration

2016 ASD Parent Summit now accepting registrations!

The Kentucky Autism Training Center is pleased to announce that registration is open for the 2016 ASD Parent Summit in Hazard, Kentucky. The two-day event for self-advocates, families and professionals will be held April 15 and 16 at the Kentucky Valley Educational Cooperative. KATC is coordinating this event in collaboration with the Office of Autism, Kentucky Valley Educational Cooperative and Kentucky Educational Development Corporation.

For the low cost of $20/individual or $30/couple, participants will enjoy dinner and resource roundtables Friday evening and a full day of sessions, including a keynote speaker and lunch on Saturday. 

A limited number of free rooms will be available for participants who live 60 or more miles from the event site (KY Valley Educational Cooperative) - the participant must register for the Parent Summit and must make their hotel reservations by March 1. 

Please see the Commonwealth Council on Developmental Disabilities website for information regarding their Leadership Development Grant: This reimbursement grant is available for financial assistance for individuals with developmental disabilities and their close support network to participate in both in-state and out-of-state leadership development opportunities. What's covered: travel (mileage), registration, lodging (if you do not receive free accommodations), and attendant/respite care.


Last Updated 12/15/2016