Go to Kentucky.gov home page
Kentucky Cabinet for Health and Family Services (Banner Imagery) - Go to home page

Diagnosis-Specific Resources

A wide variety of groups and organizations exist that may provide information and support for individuals with certain conditions as well as the professionals who work with them. Many of these links contain pages with helpful links to other resources. While this list is not comprehensive, it may be a good place to start when searching for more information.

Inclusion on this list does not imply endorsement by CCSHCN. Other resources may be available in your area.

 

Asthma

Asthma and Allergy Foundation of America

Allergy and Asthma Network Mothers of Asthmatics

American Lung Association of Kentucky

 

Cerebral Palsy

United Cerebral Palsy Association (Cincinnati Chapter)

Kennedy-Krieger Institute

 

Cleft Lip and Palate

Cleft Palate Foundation

 

Craniofacial

Ameriface

FACES: The National Craniofacial Association

Let’s Face It USA

National Foundation for Facial Reconstruction

Children’s Craniofacial Association

Craniosynostosis & Positional Plagiocephaly Support, Inc.

 

Cystic Fibrosis

Cystic Fibrosis Foundation

KY/West Virginia Chapter: CFF

 

Eye

InfantSEE Project

Kentucky Council of the Blind

 

Heart

American Heart Association

Kids with Heart

National Heart Lung and Blood Institute Information Center

National Marfan Foundation

 

Hemophilia

National Hemophilia Foundation

Kentucky Hemophilia Foundation

Hemophilia Federation of America

World Federation of Hemophilia

 

Neurology/Seizure

Children's Hemiplegia and Stroke Association

The International Rett Syndrome Foundation

National Institute of Neurological Disorders

United Leukodystrophy Foundation

 

Neurosurgery

National Hydrocephalus Foundation

National Institute of Neurological Disorders


 

Orthopedic

American Amputee Foundation

Amputee Coalition of America

Muscular Dystrophy Family Foundation

National Marfan Foundation

 

Otology

Kentucky Commission on Deaf & Hard of Hearing

Hearing Loss Association of Kentuckiana

Kentucky Association of the Deaf

American Society for Deaf Children

Telecommunications for the Deaf, Inc.

 

Rheumatology (JRA)

Arthritis Foundation (Kentucky Chapter)

 

Scoliosis

National Scoliosis Foundation

iScolisios.com

 

Spina Bifida

Spina Bifida Association of Kentucky

American Syringomyelia Alliance Project

 

Last Updated 10/24/2012
Privacy | Security | Disclaimer | Accessibility Statement