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Kentucky Birth Surveillance Registry

Kentucky Birth Surveillance Registry
275 E. Main St. HS2W-A
Frankfort, KY 40621

Phone: (502) 564-4830
Toll free: (800) 462-6122
Fax: (502) 564-1510
email

Photo source CDC

Zika and Pregnancy

In 2016, 44 states reported cases of pregnant women with evidence of Zika. Most were travel associated. About one in 10 pregnant women with confirmed Zika had a fetus or baby with birth defects. Only one in four babies with possible congenital Zika were reported to have received brain imaging after birth according to data from the U.S. Zika Pregnancy Registry which collects data from all 50 states and the District of Columbia.

To prevent Zika virus during pregnancy, pregnant women should:

  • Avoid travel to areas with Zika. Pregnant women who must travel to an area with Zika should talk to their healthcare provider before traveling to understand the risks. 
    World Map of Areas with Risk of Zika Kentucky logo designating an external link
  • Follow steps to prevent mosquito bites if they live in or travel to an area with Zika. 
    Prevent Zika Virus  Kentucky logo designating an external link
  • Avoid getting Zika by using condoms or not having sex if their sexual partner lives in or travels to an area with Zika. 
    Sexual Transmission and Prevention of Zika  Kentucky logo designating an external link
What is the Kentucky Birth Surveillance Registry (KBSR)?

KBSR is a state-mandated surveillance system designed to provide information on the incidence, prevalence, trends and possible causes of stillbirths, birth defects and disabling conditions. KBSR collects information on children from birth to age five diagnosed with any structural, functional or biochemical abnormality. The system relies primarily on hospital, vital statistics and laboratory reporting. KBSR is administered by the Department for Public Health in the Cabinet for Health and Family Services.
 
KBSR was developed through a collaboration with the March of Dimes, the Kentucky Hospital Association, KBSR Advisory Committee and advocacy organizations to develop an information collection system. KBSR collects information on inpatients from acute care hospitals and birthing centers. Reporting is required by medical laboratories licensed in Kentucky. Hospital outpatient reporting is voluntary. KBSR operates under the authority of KRS 211.651-670.

Confidentiality

The legislation provides strict confidentiality guidelines for the registry. All identifying information is strictly safeguarded and is protected by state law from unauthorized release.

Legislation regarding KBSR  

KAR 902, Chapter 19, #10 - Kentucky Birth Surveillance Registry Reportable Codes 

KRS Chapter 211 #651 - Definitions for KRS 211.651 to 211.670

KRS Chapter 211 #655 -  Legislative findings and statement of intent

KRS Chapter 211 #660 - Kentucky birth surveillance registry - Department's authority to promulgate administrative regulations

KRS Chapter 211 #665 - Advisory committee - Duties

KRS Chapter 211 #670 - Confidentiality of registry reports and records - Use of information

The Mission of the KBSR

The mission of the KBSR program is to develop and implement a Birth Surveillance Registry that promotes early and accurate identification of children with birth anomalies and other disabling conditions and facilitate prevention, planning and service delivery in the Commonwealth of Kentucky.

The Objectives of the KBSR

Surveillance

  • Create and maintain a registry of birth defects in Kentucky 
  • Analyze the patterns of birth defects in Kentucky
  • Monitor data for changes in rates through time and geography
  • Respond to requests for aggegrate data
  • Evaluate timeliness and quality of data on birth defects
  • Compile and disseminate surveillance data

Research

  • Facilitate research studies to help identify causes of birth defects

Prevention

  • Support the education of the general public and health professionals about the causes, surveillance, impact and prevention of birth defects

Services

  • Refer identified children and their families to appropriate services
  • Evaluate referral program
Recommendations for a Healthy Pregnancy
  • Take a multivitamin that contains 400 mcg of folic acid every day.
  • Have regular medical checkups.
  • Talk to your health care provider about any medical problems and medicine uses (both over-the-counter and prescription). Ask about avoiding any substances at work or home that might be harmful to a developing baby.
  • Keep vaccinations updated.
  • Avoid eating raw or undercooked meat.
  • Avoid alcohol, tobacco and street drugs.

 

Last Updated 4/24/2017