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Health and Family Services Cabinet
State seeks input from families of children with special needs; Survey open online through Oct. 31

Press Release Date:  Friday, October 02, 2009  
Contact Information:  Media Contact: Anya Armes Weber, (502) 564-6180, ext. 4014; or Vikki Franklin, (502) 564-7042  


FRANKFORT, Ky. (Oct. 2, 2009) – The state is asking for feedback from the public relating to services for children who have special health care needs.

The Commission for Children with Special Health Care Needs (CCSHCN) is seeking input this fall through a survey that will help shape the way families with children who need special services receive assistance.

The survey is available online and can be completed electronically through Oct. 31. 

The survey link is on the CCSHCN Web site at http://chfs.ky.gov/ccshcn/default.htm. The survey is directed at youth diagnosed with a special health care need and families who care for children with special health care needs.

Part of the Kentucky Cabinet for Health and Family Services, CCSHCN serves youth ages 21 and younger who have special health care needs.

Every five years, CCSHCN conducts a statewide needs assessment to determine what programs – including schools and school-based programs -- are helpful, what resources are available geographically and what resources families want but lack access.

CCSHCN Executive Director Rebecca Cecil said previous surveys have helped staff determine patient satisfaction and make critical program changes.

“There is no group better to help guide our strategic planning than the people we are working for – the children and their families,” she said. “We are always open to suggestions, but this is more formal research that we can use to support any changes we’ll propose on behalf of our customers or potential clients.”

Parents or caregivers of any child with special health care needs should complete the survey. Children do not have to be enrolled at the commission to participate in the survey. Any child who is old enough to answer the questions can also complete the survey.

The survey is anonymous and can be completed in about 20 minutes from any computer with Internet access.

Paper copies of the survey are available by contacting Stephanie Mitchell at stephanie.mitchell@ky.gov or (502) 429-4430, ext. 283. Mitchell can also give information about telephone surveys for individuals who cannot complete an online or paper copy. 

Learn more about services for children with special health care needs online at http://chfs.ky.gov/ccshcn/.
 
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Last Updated 10/2/2009