The Kentucky Family to Family Health Information Center (KY F2F HIC),
housed within the Office for Children with Special Health Care Needs
(OCSHCN), provides support, education, and advocacy for families of
children and youth with special health care needs. Since receiving the
Family to Family HIC Grant in 2009, it has helped families navigate
health care systems, access services, and connect with community
resources. Rather than a physical building, KY F2F HIC is a statewide
network, offering guidance, referrals, and assistance through clinic
locations, ensuring families receive support no matter where they live.
Who does Kentucky F2F HIC Serve?
- Families of Children and Youth with Special Health Care Needs: Through support, information, education, and training we help families navigate their child's health care needs. Whether they need advocacy, guidance through complex health systems, or connections with others facing similar challenges, we are here to assist.
- Professional Organizations: provide family-centered perspectives, training, and resources to enhance services for children and youth with special health care needs. By working together, F2F HICs help professionals better understand and serve the families in their communities.
F2F HIC Services
Providing Peer Support with Parent to Parent USA Program (P2P)
Ky F2F HIC is a partner of P2P USA. Parenting a child with special
health care needs can be both rewarding and challenging. Connecting
with others who truly understand your journey can make all the
parents and caregivers find support, guidance, and encouragement
from others who have walked a similar path. Whether you're looking for
someone to listen, share experiences, or help you find solutions, we
are here to connect you with a community that understands. If you're
interested in connecting with another parent or becoming a mentor,
Navigating Insurance for Children and Youth with Special Health Care Needs (CYSHCN)
- KY Healthcare Connection – kynect is Kentucky’s one-stop resource for health coverage and benefits. Families of children with special health care needs can use it to explore Medicaid, KCHIP, and other programs that cover medical services and therapies. It simplifies comparing plans, checking eligibility, and applying for benefits.
- Medicaid for Children provides benefits to thousands of children across the state, with most receiving coverage through a managed care organization (MCO). However, there are multiple programs available to support children's health care needs.
Learn more at Kentucky's Medicaid website for children
- Medicare is health insurance for people 65 or older. Eligibility may be available earlier due to a disability, End-Stage Renal Disease (ESRD), or ALS (also called Lou Gehrig’s disease). Some people get Medicare automatically, others have to actively sign up. At medicare.gov, you can navigate the right path for your situation.
Learn more at medicare.govAdditional Assistance, Education, and Training
Family-to-Family Health Information Centers (F2F HICs) provide
families of children with special health care needs with guidance and
the professional organizations that support them. We provide
workshops, one-on-one support, and informational resources on
topics like Medicaid, advocacy, and care coordination. By equipping
families and organizations with knowledge and tools, we will empower
them to make informed decisions and advocate for children’s health
and well-being.
Interested in partnering with Ky F2F HIC and your professional organization?
Interested in Volunteering or Becoming involved in Ky Family to Family HIC?
If you are interested making a difference in the lives of families
navigating complex health care needs and are a caregiver or parent of
a child with special health care needs, you could work as a support
parent or for KyF2FHIC. Contact us for an application.
Contact Kentucky Family to Family Health Information Center
Ky Family to Family HIC
310 Whittington Parkway, Suite 200 Louisville, KY 40222
Phone:(502) 429-4430
Toll Free:(800) 232-1160
The F2F program is federally funded by the Health Resources and Services
Administration (HRSA) under the Maternal and Child Health Bureau (MCHB)
as part of a national network of Family-to-Family Health Information
Centers across the U.S.